Health is a journey, not a destination, and I’m overdue to share details about where my journey has taken me in the last year+. My last update was September of 2015 when I was really at an extreme low point, and which was shortly after arriving here in Memphis, TN.
I can sum it up with 2 words: uterine fibroids. This will be a long post – my background in science won’t let me skimp on information and I have spent the last 8 months poring over all the information I could find about fibroids, and I’d like to do my best to distill and share so that it may help other women.
Fibroids are so much more common than you probably realize so at least read on to learn more about statistics and symptoms, so you can keep an eye on what is going on in your own body and make lifestyle changes sooner rather than later to improve uterine health.
About Uterine Fibroids
Quickly, I want to share a few facts and statistics about fibroids.
Fibroids are non-cancerous tumors made of smooth muscle cells and fibrous connective tissue and they grow inside the cavity, within the walls, or on the outside of the uterus. They are also called uterine myomas, leiomyomas, or fibromas.
I was shocked to learn that conventional doctors are starting to consider them a “normal part of aging” given how extremely common they are today.
Here is a quote from an NIH Fact Sheet on fibroids:
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“Most American women will develop fibroids at some point in their lives. One study found that, by age 50, 70 percent of whites and 80 percent of African Americans had fibroids.”
Most. American. Women. MOST OF US are going to have fibroids in our lives. THAT is such an insane statistic, and makes me so sad. And it is so not NORMAL despite being common today. Here are some more staggering facts from the National Uterine Fibroid Foundation:
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“~600,000 hysterectomies performed annually in the United States (~170,000 – ~300,000 due to uterine fibroids)
Over 5 billion dollars spent annually on hysterectomies (medical expense of procedures only)
Average time off from work to recover from a hysterectomy is 6 weeks (~144 million lost work hours)
~60% of all women undergoing hysterectomy have their ovaries removed (castration)
Over 5 billion dollars spent on hormone replacement therapy annually
37% of all women undergo hysterectomy by age 60
Myomectomy is performed less than 40,000 times a year in the U.S.
Over 25,000 uterine artery embolizations have been performed worldwide since 1996.
For every 10,000 hysterectomies performed, 11 women die. (Approximately 660 women die each year in the United States from complications of hysterectomy.)”
I am just so not OK with having any of my organs removed from my body. I have chosen to use holistic methods and Chinese medicine to address the root causes and alleviate symptoms. I have already had huge improvements and I hope that sharing my story will help other women find relief and encouragement, too.
My Uterine Fibroids Symptoms
My symptoms are pretty classical for fibroids. Not every woman will have all of these, and some have others. Some women are lucky enough to have no symptoms related to their fibroids, if they are small. Further down, I will address how Chinese Medicine has improved these symptoms (everything is so much better now!)
- Irregular periods – ranging from 18 up to 42 days
- Heavy bleeding 2-3 days per cycle- the official parameters for this mean you have to change your pad/tampon more frequently than every 2 hours
- Brown, “old” looking spotting 1-3 days before menstruation
- Large stringy clots in menstrual fluid
- Extreme, debilitating cramping, both during menstruation and in the week after, sometimes randomly throughout cycle
- Painful sex and orgasms, sometimes enough to bring me to tears
- Raw, inflamed feeling in lower abdomen
- Pain with bowel movements
- Increased urinary frequency and pain with a full bladder
- Ability to physically palpate masses
- Labile moods throughout cycle – sadness during follicular phase, anger during luteal
- Constant discomfort, pressure, and pain in the lower abdomen, with an inability to focus attention elsewhere
- Extreme fatigue, usually coupled with the pain episodes
Basically, the fibroid symptoms took over my entire life. All of this came to a head right when I had to work hardcore on my print cookbook, Latin American Paleo Cooking, making that already difficult process so much harder. Looking back I am truly amazed at what I was able to accomplish while dealing with these symptoms.
Other symptoms that I haven’t had include:
- Very long periods (7-10 days)
- Pain shooting down the legs
- Constipation
- Back pain
- Spotting or bleeding between periods
Fibroids and Hormonal Imbalance
We don’t know yet for certain exactly what kind of hormonal imbalance causes uterine fibroids to develop. When women reach menopause and naturally stop producing as many hormones, fibroids can shrink or disappear entirely. Some gynecologists will tell you to just hang in there until menopause, when your body will give you natural relief from symptoms.
Some doctors believe that the body being in a state of estrogen dominance is the root cause condition that allows the fibroids to form in the first place. Estrogen dominance can occur when you produce too much estrogen, not enough progesterone, or a combination of both. Hormone balancing is tricky business, but one common alternative treatment for fibroids is bio-identical progesterone supplementation, either via oral, transvaginal suppository, or transdermal cream route of administration.
I personally prefer to try to address the root cause of why my body is not producing hormones in the correct balance rather than supplement with hormones, but know that that is an option you can explore with your doctor.
Diagnosing My Uterine Fibroids
Skip this if you want to hurry up and get to the details about my healing protocol.
After I moved here to Memphis in August 2015 (which was extremely stressful, done hastily, and followed fast on the heels of a heartbreaking falling out with people I deeply cared about), the symptoms related to my period got worse and worse. I knew something was really wrong, but was in denial until about May 2016. But I did not see a conventional Western MD until September, because I have such a difficult time seeing that kind of doctor, since it is, in my experience, almost always so disempowering and makes me super anxious and stressed.
At the end of July I had a really scary experience that lit a fire under me to finally work up the courage to see an MD. I was in the worst pain of my life, balled up in the fetal position, unable to stop crying due to the blinding pain. I called to make an appointment after that. 2 months later when I was able to be seen (oh, the joys of being uninsured and relying on low-cost, donation-funded healthcare!) the doctor said right away during the pelvic exam that it felt just like fibroids, and referred me for pelvic and trans-vaginal ultrasounds to confirm.
I still have not seen copies of the ultrasounds, but the very basic report said: “there are multiple fibroids seen within the uterus with the largest measuring 5.8 x 4.3 cm. The uterus measures 9.1 x 6.2 cm.” Endometrium and ovaries were normal.
So, the largest one at the time of scanning was about the size of a lemon. That’s about as big as they can be and still shrink on their own using the methods I have been using. They can grow much larger, the size of grapefruits or melons and in those cases surgery is usually unavoidable.
I declined a consult with a gynecologist because I did not want to be told that I should have a hysterectomy since I am not having children and/or take drugs/hormones. I also declined because I was told the GYN would not even be able to see my ultrasounds and therefore would be unable to give me more detailed information, such as exact number and type(s) of fibroids (again, joys of using donation-funded healthcare and all the headache that entails. Even though I am grateful the service exists, it is extremely disorganized.)
I made a resolve to do everything I could to shrink fibroids naturally, and began my intense research and started to formulate a plan, working with my Chinese medicine doctor on the details.
I do not handle being told that I cannot do something, which I am pretty sure the GYN would have done. In my early 20s I was told by doctors that I would never see remission of hidradenitis suppurativa (HS) or rosacea (I did), that I would forever need chronic antibiotics to keep HS under control (I sure haven’t), that eventually I would need disfiguring surgery and skin grafts for the HS (nope, hasn’t happened), that I would never come off antidepressants (I did), that I would never lose weight without overexercising and restricting calories (I sure did!).
It makes me absolutely furious to be told I am powerless to effect change without drugs or surgery, and I have made the choice that it is not worth the emotional toll. I am not saying YOU should decline consulting with a GYN, but I encourage you to do thorough research before making any health decisions and to consult with practitioners whom you trust and who listen to you desires.
I do have a holistic-minded GYN on my radar that I will travel to consult with should that need ever arise, but I trust it won’t given my improvement to date with my current protocol and my stubborn determination to heal.
Chinese Medicine for Healing Fibroids
If you’ve followed me for any length of time then you know how much trust I place in Traditional Chinese Medicine. I consider my acupuncturist to be my “primary care doctor” since the treatments he provides *actually* result in measurable (sometimes profound) improvements in health and wellness. I can’t say any MD labeled by an insurance company as my “primary care doctor” ever accomplished anything even remotely similar…
I am so extremely lucky to be working with my current doctor, who is trained in Chinese herbs as well as acupuncture, and makes me custom batches of herbs each week that vary based on where I am in my cycle and on my symptoms – not just physical, but also emotional. Chinese medicine does not separate the body from the mind.
Quick note about Chinese herbs: The National Certification C
ommission for Acupuncture and Oriental Medicine (NCCAOM) is the AMA of the Chinese Medicine world and is the organization that administers board exams/certifications and licensure as diplomates. Not all acupuncturists receive in-depth herb training, so if you want to use herbs the way I have, you should look for a doctor who is either a Certified Diplomate in Oriental Medicine (which includes herbology) or who is a Certified Diplomate in Chinese Herbology. Find a practitioner near you and see their certifications on the NCCAOM website.
If you are interested in getting a better understanding about Chinese medicine then I really strongly encourage you to read one or both of these books. I found them at my library but ended up purchasing them because I like to refer back to them. They are both wonderful but if I had to choose one, I would chose The Web That Has No Weaver. It will change how you view your body, health, and disease and empower you to make better choices for your health.
Acupuncture and Electro-acupuncture For Fibroids
This is not me, but it almost could be! I get electro-acupuncture on some of those same points, but usually a max of 4 at a time.
I get acupuncture 2-3 times per week, sometimes getting electro-acupuncture on special points on my lower abdomen (called Zi Gong Xue) and/or on my legs (usually around Spleen 6) or even hands (Large Intestine 4). I was nervous the first time I had electro-acupuncture, but I promise it is nothing to be afraid of and if you are dealing with any type of pain you will be so glad you had it, since it is so wonderful at relieving pain.
Acupuncture, and especially electro-acupuncture, has a profound and significant impact on the fibroid symptoms, which I often notice as soon as I get off the table. I always have immediate pain reduction, reduced feeling of inflammation, and can forget I have fibroids after a treatment. This has been a cumulative effect bringing me to my current state of having immense relief from symptoms (more on how my symptoms have improved further down in the bulleted list).
Interestingly enough I just saw this research out of the VA showing that electro-acupuncture (EA) causes a flood of a type of adult stem cell called mesenchymal stem cells (MSCs) which is what researchers believe are the reason why EA is so healing and pain-relieving. Side note: the last lab I worked in used bone-marrow derived MSCs as a therapy to heal the brain after stroke, so it’s super cool to me that there is this MSC connection with electro-acupuncture and my own healing!
Raw Chinese Herb Decoctions For Fibroids
Chinese herbs can be taken as pills, powders, “tea pills” that you either chew or brew into a tea by dissolving in hot water, or as what are called raw herbs, pictured above.
I am doing raw herbs because it gives my doctor the ability to adjust my formula each week based on my current symptoms as well as where I am in my cycle. It involves weighing out specific amounts of bulk herbs (and by herbs, I mean everything from barks to roots to dried fruits to seeds and even some animal products, like oyster shells and seashells). I take this bulk formula and soak it in water and then simmer into a decoction, drinking half in the morning and half at night.
I take a few days off during each cycle when I’m bleeding. My doctor likes women to take a break from herbs/supplements/medications (if it can all be done SAFELY and after consulting with whoever put you on everything to confirm it is OK) for the few days when you have real menstrual flow. The body is in purge-mode during this time, so it is nice to give it a break from the things you are taking, too. I often lose my appetite during my period, so I listen to my body and will generally fast or eat much less than normal.
Previous doctors I’ve worked with have put me on all the other types of herbs, too, and they can be very effective depending on what you are treating. But I am really grateful to be able to do the raw herbs to treat fibroids.
The formula, as I said, changes week to week. Please don’t ask me to tell you which herbs I am taking because it is not smart for you to try to re-create the formula without guidance from a qualified Chinese Herbologist. Here’s a photo of my current batch….what do you recognize? 😉
Just because I think it is so neat that I’ve got seashells in my medicinal herbs, here is a bit about it: it’s Ark Shell (Wa Leng Zi) and is included for its ability to break up abdominal masses and relieve menstrual pain. I also save them and use them to decorate my garden 🙂
There are some clinical trials that have been done in China that have shown some specific herb formulas to be effective at shrinking fibroids. I know my doctor has used those formulas as a guideline in his treatments. If you want to read a rather dense article about Chinese medicine theory, herbs, and fibroids, here you go. If you aren’t versed in Chinese medicine’s unique language and way of talking about the body, you may get lost, fair warning. But, if you read one of the books I linked above first, it will make a lot more sense. Show this article to the doctor you want to work with and ask about the clinically-evaluated formulas described at the end of the article.
Moxibustion (Moxa) and Acupressure For Fibroids
Moxa is something I do at home as part of my self-care routine. Moxibustion refers to the burning of the herb mugwort, which has a rich history of use in many herbal medicine traditions. I use sticks that are rolled like big cigars, light one end, and then use it to warm specific points on my body. You hold it about an inch away from the skin and move it in small circles to warm a point.
Without getting into too much Chinese Medicine theory, I’ve been fascinated to observe that some of my meridians are “Cold” and that I can barely feel the heat coming from the burning moxa. Move it over a few inches and I feel the warmth normally. That is a clear sign that those “Cold” points NEED the “Heat” from the moxa. And it also means I am really really careful when I use it so I don’t accidentally scorch my skin on those “Cold” spots.
I also find burning moxa over my lower abdomen to be extremely soothing and also great at relieving fibroid pain. Mugwort is known to be relaxing, so it’s great to breathe the aroma at night, to help wind down for sleep. Some people use it to promote vivid dreaming, but I haven’t noticed that effect.
I have been instructed to use moxa on the inside of my legs, particularly focusing between my ankles and knees. The point Spleen 6 is well-known for it’s effects on the uterus – you can massage it to relieve cramps, and it can also induce labor. With acupuncture/acupressure, the more tender a point is the more that point NEEDS to be needled/massaged to break up the stagnation that is causing the pain. My Spleen 6 is alway super duper tender, so I try to give it a lot of TLC with moxa & acupressure. To assist with acupressure, I like to use a Theracane and also a selenite massage wand, which has a rounded end as well as a pointed end – sometimes I really like that pointy end for stubborn points!
You can order moxa sticks on Amazon or get them through your Chinese medicine doctor. Please consult with one before using them on yourself! I have not ordered on Amazon but these look like the ones I use. Also make sure that you get an extinguisher if you purchase moxa.
The larger leaf-based moxa rolls produce smoke (like a cigar) and need to be used in a ventilated area or outdoors. Moxa has an……interesting odor that smells remarkably like marijuana. Do keep that in mind before burning it. In clinics that use moxa it is not uncommon to see signs hung up declaring that no, the doctors aren’t sitting around getting high, but rather moxa is being burned.
Over the winter I also used smokeless moxa, so I could comfortably use it inside, rather than freezing my tush off outdoors. Smokeless moxa sticks have the herb bound with charcoal so that the smoke is drastically reduced and has very little to no odor. They do not get as hot and some say they are less effective than the leafy herb, but are better than no moxa at all!
Meditation and Visualization For Fibroids
One of the best things my doctor has done for me is help me to develop a regular meditation practice. My default way of thinking about illness and relating to my body having something “wrong” with it is to go down a spiral of self-hatred and despair. With meditation I have learned to stop that process in its tracks and to regain perspective. I’ve also learned some methods for coping with and relieving pain with meditation with Natural Pain Relief.
I also use some visualization practices with meditation, seeing a healthy, fibroid-free uterus and using all my senses to see what that reality feels like. Healing Fibroids: A Doctor’s Guide to a Natural Cure has some really fabulous exercises I’ve been using!
I use a free app & website call Stop, Breathe, and Think for wonderful guided meditations or for a gentle meditation timer. I also recently upgraded to the paid version so I have access to instructional yoga videos and even more meditations.
I have also found the meditation book Turning the Mind Into An Ally to be incredibly helpful, with the title describing exactly what I so desperately needed to do!
I also use some Tibetan singing bowl meditations, particularly note D which is associated with the reproductive organs and the 2nd chakra. I have this YouTube video bookmarked for easy reference: